Official Website of the Office of the National Coordinator for Health Information Technology
Data used to categorize individuals for identification, records matching, and other purposes.
Data Element |
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Race
Applicable Vocabulary Standard(s) Applicable Standards
Both standards are required
Adopted at 45 CFR 170.207(f) View guidance on Applicable Vocabulary Standards and versioning. |
Submitted by NCQA on
NCQA supports ASTP’s stated plans to modify the existing Race and Ethnicity elements and terminology requirements to support implementation of the updated OMB SPD 15 standard in future USCDI versions. We recommend USCDI update to align as early as possible (well in advance of the March 2029 OMB deadline) to support clear requirements and alignment of standards across the industry.
Submitted by dataequitycoalition on
Recommendation: The Data Equity Coalition recommends that ASTP update the current race and ethnicity data elements to align with the 2024 revised Office of Management and Budget (OMB) Statistical Policy Directive No. 15 (SPD 15) standards for the collection and use of race and ethnicity data. We recommend that ASTP consolidate the current race and ethnicity data elements into a single data element, aligning with SPD 15.
Rationale: Persistent disparities in health outcomes, particularly among historically underserved communities, are exacerbated by outdated and incomplete data collection practices. Standardizing these elements across federal health programs, health IT systems, and value-based care models is foundational to identifying disparities, mitigating bias in emerging technologies, and advancing health equity. Incorporating the updated OMB SPD 15 categories into the USCDI will promote consistency across the ecosystem and support HHS’s broader goals in prevention, wellness, and chronic disease management.
Submitted by NCQA on
Recommendation: Update the Race and Ethnicity data elements to align with the OMB revisions to the Statistical Policy Directive No. 15: Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity (SPD 15), published on March 29, 2024. First, in alignment with the revised SPD 15, we recommend ASTP combine the individual race and ethnicity elements to create one data element: Race and/or Ethnicity. Second, we recommend ASTP update the vocabulary standards for the Race and/or Ethnicity data element to reference the March 2024 revised SPD 15.
Rationale: NCQA supports ASTP’s stated plans to modify the existing Race and Ethnicity elements and terminology requirements to support implementation of the updated OMB SPD 15 standard in future USCDI versions. We recommend USCDI update to align as early as possible (well in advance of the March 2029 OMB deadline) to support clear requirements and alignment of standards across the industry.
Submitted by ufbfung on
Please align with the new OMB regulations that were just released: https://www.federalregister.gov/documents/2024/03/29/2024-06469/revisions-to-ombs-statistical-policy-directive-no-15-standards-for-maintaining-collecting-and. There is a conflict between guidance from USCDI, and notably, US CORE, and it'd be great to have alignment between the new, very welcomed, OMB regulations and the various artifacts (e.g. USCDI and US CORE) that are shaping our FHIR implementations.
Submitted by rmcclure on
OMB has published updated regulations to combine Race and Ethnicity into one question. In doing so they elevate the existing Middle Eastern or North African (MENA) concept as a "top level" reporting category, but they also remove the distinction between "race" and "ethnicity" while allowing for the collection of prior top-level categories from both. I strongly encourage ONC to align with this intent and combine race and ethnicity into one data element. Note that existing models and data are easily aligned with this proposed improvement.
Submitted by Janice on
OMB recently finalized a proposal made about a year ago that combines race and ethnicity into a single concept, adds Middle Eastern and North African as a new major category, and offers the option to provide a more detailed ethnicity than currently captured among other changes. By the time USCDI v5 is likely to be used in regulation those changes will be several years along and likely starting to be absorbed/used in the real world. We suggest ONC consider whether it makes sense to adopt those changes in USCDI v5 or, if not, to at least consider a plan for how it will move to support those changes in the future.
Submitted by CDC_DSMH_WG on
Submitted by cmayo@med.umich.edu on
The AAPM Operational Ontology for Radiation Oncology ( https://aapmbdsc.azurewebsites.net) noted several systems for identifying Patient Reported Race . HL7 Reference system was recommended as the primary system. https://www.hl7.org/fhir/v3/Race/cs.html
Note that OORO named the element Patient Reported Race rather than Race, to emphasize that this characterization of the patient should be selected by the patient, not a second party. Patients note that the value selected for them by a provider can be incorrect.
Submitted by CDC_DSMH_WG on
Subject: Additional values in the valueset
New Race values proposed for addition to the value set with code as ‘PHVS_Race_CDC’ and valueset name as ‘Race Value Set’ is as follows:
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Submitted by NCQA on
NCQA v8 recommendation: Race and Ethnicity
Recommendation: NCQA continues to recommend ONC update the Race and Ethnicity elements and terminology requirements to support implementation of the updated OMB SPD 15 standard. We recommend USCDI update to align as early as possible (well in advance of the OMB deadline).
Rationale: USCDI updates for these elements will support clear requirements and alignment of standards across the industry.